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Marina and Julia

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Marina has a rare disease called Rubinstein-Taybi syndrome. Nevertheless, her mother Julia managed to make her daughter’s life full and interesting.


In 2006 Julia Mazharova gave birth to her daughter Marina. After numerous examinations and operations doctors revealed an uncommon chromosome abnormality – Rubintein-Taybi syndrome. Despite the disease, the fact that her husband abandoned family and lack of money, Julia succeeded in making Marina grow and learn like any healthy child and managed to establish in her home Vologda region a non-governmental organization “Buduschee est” (Future is possible) that supports parents, who have children with disabilities.

© Anna Shulyatyeva